WASHINGTON — Next Wednesday, a cadre of ALS patients will gather for a protest outside the FDA’s headquarters in suburban Maryland with a clear message: “No More Excuses.”
The rally is being organized by a ragtag group of ALS patients who connected mostly through Facebook, and it’s far less a production than other efforts like the 2014 ice bucket challenge that swept around the world.
advertisement
These protesters haven’t even established a formal organization or a website; some said they’ve never even been to a protest. There’s nary a poster board in sight, yet.
Get unlimited access to award-winning journalism and exclusive events.
Subscribe Log In
Previous article：
He's 19 months old and has one of the world’s rarest diseases
Next article： Hollywood unions extend contract negotiations for actors
Next article： Hollywood unions extend contract negotiations for actors
